Research preferences
Fertility care improves when patient experiences can be studied. Taking part is entirely your choice, and choosing not to changes nothing about your care.
Who would use it, and what for
- Who: university-based fertility researchers and the clinical registries they work with, in Australia, under a human research ethics committee approval. Nest of Kin does not sell information, and it is never used for advertising or insurance.
- What for: understanding how long steps take, how often plans change, which information patients struggle to get hold of, and how outcomes differ between groups of people.
- What is shared: de-identified records only. Your name, date of birth, address, contact details, partner details and clinic identifiers are removed before anything leaves.
What a contributed record looks like
age_band: 30–34 state: NSW cycle_number: 2 step: egg collection days_from_previous_step: 21 outcome_recorded: yes
Researchers only ever see it combined with others, for example: “In this group, 62% of second cycles began within eight weeks of the first.”
Your choice
May de-identified information from your records contribute to approved fertility research?
Changing your mind
Choosing “no” later stops any further contribution immediately, and unused contributed records are removed from the research pool. Findings already published cannot be withdrawn — they contain no identifying information and cannot be traced back to you, and published work is not reissued.
Notes you write yourself
Anything you type in your own words — journey notes, questions for appointments, how you were feeling — is never contributed, even when you have said yes above. Free text is too easy to identify someone from, so it stays with you.
Being contacted about research
This is a separate decision. You can contribute without ever being contacted, or agree to be contacted without contributing.
Researchers may invite me to take part in studies
At most a few invitations a year, by email. You are never obliged to reply.
See the kind of insight this produces
Our aggregated insights page shows fictional examples of what combined, de-identified information can show — and what it deliberately cannot.